Episode 18: Julia Maues (Living with Metastatic Breast Cancer at 36)

Julia Maues was diagnosed with breast cancer in 2013 while she was pregnant. She was 29 years old at that time. She received chemotherapy during pregnancy and then after her delivery of a healthy boy, she had tests performed that she could not have done while pregnant and it was found that the cancer had spread to her brain, liver, and bones. She is now 36 years old, living with metastatic breast cancer and making a direct impact in patients’ lives through her work as a breast cancer advocate. She focuses on bringing funding to research, highlighting the patient experiencing, challenging the current image of breast cancer, and collaborating with researchers and clinicians. A great program we discuss on this episode is  Living Beyond Breast Cancer Hear My Voice.

Julia and I connected through Twitter and were able to meet up and record this episode at the 2019 ASCO Annual Meeting. I learned so much from our conversation but one of the things she said really stood out –> when talking to someone going through cancer treatment, “Listen instead of sharing something.” I hope you enjoy our conversation!

View More: http://erinchristineportraiture.pass.us/mauesfamily

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Follow Julia: Twitter | Website & Blog

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Related Episodes:

Episode 17: Dr. Kelly Shanahan (Metastatic Breast Cancer at 58)

Episode 11: Dr. Tali Lando Aranoff (Breast Cancer at 36)

Episode 12: Laura Revzin (Breast Cancer at 29)

Episode 17: Dr. Kelly Shanahan (Metastatic Breast Cancer at 58)

“The patient didn’t fail. The treatment failed.” – Dr. Kelly Shanahan

Dr. Kelly Shanahan is a mother and an OB-GYN. She was diagnosed with metastatic breast cancer at the age of 53, several years after a diagnosis of early stage breast cancer. She is now 58 years old and has been living with metastatic breast cancer for over 5 years. Since her diagnosis, she has become a patient advocate with the goal of incorporating the patient voice into science, clinical trials and clinical medicine. She works closely with several organizations, including METAvivor, an organization dedicated to the fight of women and men living with stage 4 metastatic breast cancer. Dr. Shanahan and I connected through Twitter and were able to meet up and record this episode at the 2019 ASCO Annual Meeting. She shared her story with me — I hope you listen and gain as much as I did from her unique perspective.

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Follow Dr. Shanahan: Twitter | Facebook

Follow Dr. Teplinsky: Twitter |  Instagram | Facebook

Related Episodes:

Episode 2: Katie Kashmanian (Inflammatory Breast Cancer at 50)

Episode 10: Kate Crawford (Breast Cancer at 28)

Episode 4: Pari Berk (Colon Cancer at 43)

Support Interlude: Women’s Cancer Stories with Dr. Teplinsky. If you’re enjoying the show, please leave a rating and review on Apple Podcasts (iTunes). If you liked this episode, please share with your friends and family!

If you have any feedback or are interested in being a guest on the show, please e-mail me at interludecancerstories@gmail.com.

Episode 16: Jenn Durbal (Peritoneal Cancer at 44)

Jenn Durbal was diagnosed with primary peritoneal cancer at the age of 44. She initially presented with three months of symptoms which were initially thought to be viral or the flu. She went to the doctor multiple times and ultimately, was sent to the ER where she was found to have a collapsed lung and a build up of fluid around the lungs. Six days later, she was discharged home with a diagnosis of stage 4 primary peritoneal cancer.  Jenn is a special education instructional assistant, a mom to three daughters and a grandmother to a three year old granddaughter. She is also a carrier of a BRCA1 genetic mutation. Today, she shares her story of receiving chemotherapy and subsequent treatment and how she is living life with a diagnosis of “terminal cancer.” Image-5

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Follow Jenn: CaringBridge

Follow Dr. Teplinsky: Facebook | Instagram | Twitter

Related Episodes: 

Episode 3: Ingrid Kolstoe (Low Grade Serous Ovarian Cancer at 41)

Episode 4: Pari Berk (Colon Cancer at 43)

Episode 10: Kate Crawford (Breast Cancer at 28)

Support Interlude: Women’s Cancer Stories with Dr. Teplinsky. If you’re enjoying the show, please leave a rating and review on Apple Podcasts (iTunes). If you liked this episode, please share with your friends and family!

If you are interested in being a guest on the show, please e-mail me at interludecancerstories@gmail.com.

Episode 15: Samantha Harris (Breast Cancer at 40)

Samantha is an Emmy winning TV host and journalist, an author, a certified personal trainer, nutrition advocate, and a promoter of healthy living. She was diagnosed with stage 2 breast cancer in 2014. After her diagnosis, she sought out ways to improve her overall health, leading her to write Your Healthiest Healthy: 8 Easy Ways to Take Control, Help Prevent and Fight Cancer, and Live a Longer, Cleaner, Happier Life. On today’s episode, Samantha shares her personal journey with her breast cancer diagnosis and subsequent treatment, and provides practical advice on how to eat better, reduce toxins, and optimize and maximize your health, energy and happiness.

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Follow Samantha: Website | Twitter | Facebook | Instagram

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What we discuss on this episode: 

Think Dirty App

Environmental Working Group

Samantha’s Recipes for The Kitchen Sink Smoothie, Lentil Chopped Salad, and Black Bean Burger

Related Episodes:

Episode 11: Dr. Tali Lando Aranoff (Breast Cancer at 36)

Episode 4: Pari Berk (Colon Cancer at 43)

Episode 5: Dr. Amy Smith-Morris (Ovarian Cancer at 30)

Support Interlude: Women’s Cancer Stories with Dr. Teplinsky. If you’re enjoying the show, please leave a rating and review on Apple Podcasts (iTunes). If you liked this episode, please share with your friends and family!

If you are interested in being a guest on the show, please e-mail me at interludecancerstories@gmail.com.

Episode 14: Sarah Schillaci (Hodgkin Lymphoma at 34)

Sarah was diagnosed with Hodgkin lymphoma at the age of 34 right in the middle of training for the Boston Marathon. On today’s episode, she talks about her experience with fertility preservation before starting chemotherapy, the effect treatment had on her career (she is a high school English teacher!), her running and her identity, the incredible support she received during chemotherapy and finally, what life now looks like after completing treatment.

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Follow Dr. Teplinsky: Facebook |  Twitter | Instagram

Follow Sarah: Facebook | Instagram

Related Episodes:

  1. Episode 12: Laura Revzin
  2. Episode 7: Krista Campbell
  3. Episode 6: Amanda Blauvelt

Support Interlude: Women’s Cancer Stories with Dr. Teplinsky. If you’re enjoying the show, please leave a rating and review on Apple Podcasts (iTunes). If you liked this episode, please share with your friends and family!

If you are interested in being a guest on the show, please e-mail me at interludecancerstories@gmail.com.

Episode 13: Bridget Hopkins (Breast Cancer at 35)

Bridget was diagnosed with breast cancer at the age of 35 right in the middle of wedding planning. On today’s episode, she talks about her experience with mastectomy and reconstruction, what it was like finding out she was a BRCA2 mutation carrier, the implications of her diagnosis and genetics information on fertility plans, and what taking tamoxifen has been like for her.

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Follow Bridget: Facebook

Follow Dr. Teplinsky: Twitter | Instagram

Related Episodes:

  1. Episode 1: Izabela Gardula
  2. Episode 11: Dr. Tali Lando Aranoff
  3. Episode 8: Tina Conrad

Support Interlude: Women’s Cancer Stories with Dr. Teplinsky. If you’re enjoying the show, please leave a rating and review on Apple Podcasts (iTunes). If you liked this episode, please share with your friends and family!

If you are interested in being a guest on the show, please e-mail me at interludecancerstories@gmail.com.

Episode 12: Laura Revzin (Breast Cancer at 29)

Laura was diagnosed with breast cancer at the age of 29 and she had a two year old son at the time. On today’s episode, she talks about what it was like to be diagnosed and go through treatment, which included chemotherapy and surgery. She speaks a lot about decisions she made about fertility, the effect of chemotherapy on body image, the importance of taking care of yourself, breast reconstruction and nipple tattooing and finally, what dating is like in the aftermath of this diagnosis and treatment.

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Subscribe and Listen on Apple Podcasts |Spotify |Google Play |Stitcher

Follow Laura: Instagram |Facebook

Follow Dr. Teplinsky: Instagram |Twitter

Support Interlude: Women’s Cancer Stories with Dr. Teplinsky. If you’re enjoying the show, please leave a rating and review on Apple Podcasts (iTunes). If you liked this episode, please share with your friends and family!

If you are interested in being a guest on the show, please e-mail me at interludecancerstories@gmail.com. 

 

 

Episode 11: Dr. Tali Lando Aranoff (Breast Cancer at 36)

Dr. Tali Lando Aranoff is a a full time pediatric ENT surgeon, a mom of 3 young girls and a breast cancer survivor. Her story began when she felt a lump in her breast the night before her father was due to have surgery for a malignant brain tumor. On today’s episode, she talks about the journey that ensued, how she decided on her course of treatment, her experience of being a wife, mother and physician while going through cancer treatment and the effects it had on her life both during and after treatment. Her book, Hell and Back: Wife & Mother, Doctor & Patient, Dragon Slayer, is a raw and honest account of what breast cancer treatment is really like. It will make you both laugh and cry. During our conversation, she discusses why she wrote the book and what the world of publishing is really like. Although there are so many incredible breast cancer books out there, go read hers– you won’t be disappointed!IMG_7601

Subscribe and Listen on Apple Podcasts | Spotify |Google Play |Stitcher

Follow Dr. Aranoff: Website | Book | Facebook | Instagram

Follow Dr. Teplinsky: Twitter | Instagram

Support Interlude: Women’s Cancer Stories with Dr. Teplinsky. If you’re enjoying the show, please leave a rating and review on Apple Podcasts (iTunes). If you liked this episode, please share with your friends and family!

If you are interested in being a guest on the show, please e-mail me at interludecancerstories@gmail.com. 

Episode 10: Kate Crawford (Breast Cancer at 28)

Kate Crawford was diagnosed with metastatic breast cancer (stage 4) when she was 28 years old. She was later found to have Li-Fraumeni syndrome which predisposed her to getting breast cancer. She is a mom to three children and when she was diagnosed, she created a “Mommy Bucket List” of all the things she wanted to do and experience with her children. She is a huge advocate for metastatic breast cancer research and through hosting lemonade stands, has raised nearly $80,000 for breast cancer research with her family. On today’s episode, we talk about the importance of advocating for yourself, how she is truly living (and not just existing) with metastatic breast cancer, her choice on undergoing mastectomy but not breast reconstruction, going through cancer treatment as a young mom and finally, the importance of giving yourself the grace to heal and recover without feeling guilty about it.

IMG_9709Subscribe and Listen on Apple Podcasts |Spotify | Google Play | Stitcher

What we talk about on today’s episode/great resources:

Lotsa Helping Hands

Li-Fraumeni Syndrome (rare, inherited disorder – also check out my episode with Ingrid Kolstoe, who was also diagnosed with a rare cancer- low grade ovarian serous carcinoma)

Gotta Make Lemonade

Follow KateWebsite and Blog | Instagram | Twitter | Facebook

Follow Dr. Teplinsky: Instagram |Twitter

Support Interlude: Women’s Cancer Stories with Dr. Teplinsky. If you’re enjoying the show, please leave a rating and review on Apple Podcasts (iTunes). If you liked this episode, please share with your friends and family!

If you are interested in being a guest on the show, please e-mail me at interludecancerstories@gmail.com. 

Episode 9: Dr. Jennifer Driscoll (Breast Cancer at 39)

Dr. Jennifer Driscoll was diagnosed with breast cancer when she was 39 years old. She had left medicine six months prior to her diagnosis to spend more time with her young children. She was taking her daughter out to lunch to celebrate the first day of kindergarten when she got the call telling her she had breast cancer and life changed forever. Jennifer is a writer and and on today’s episode, we talk about how she wrote one of her books during treatment, how writing was an outlet for her, and what she is working on next. We discuss so many important topics — how to tell your children you have been diagnosed with cancer, radiation fatigue, chemo brain, book publishing and the “warrior” mentality of breast cancer treatment. Finally, she talks about finding support, what it’s like being on the other side as a patient rather than a physician and how it is so important to never feel alone.

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What we talk about on today’s episode/great resources:

BRCA Mutations: Cancer Risk and Genetic Testing

How to tell a child that a parent has cancer

Jennifer’s Books on Amazon

Follow Dr. Driscoll: Website | Facebook | Instagram

Follow Dr. Teplinsky: Instagram | Twitter | Valley Medical Group

Support Interlude: Women’s Cancer Stories with Dr. Teplinsky. If you’re enjoying the show, please leave a rating and review on Apple Podcasts (iTunes). If you liked this episode, please share with your friends and family!

If you are interested in being a guest on the show, please e-mail me at interludecancerstories@gmail.com.